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The Prader-Willi Syndrome Honeymoon Period

The Prader-Willi Syndrome Beginning Was Scary Prader-Willi Syndrome is a very scary thing to deal with when your child is born. Your baby doesn’t cry, doesn’t eat, doesn’t move. She is floppy and weak. You don’t know what is going on. You don’t know who to turn to. Often the doctors don’t know what’s going […]

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Prader-Willi Syndrome

Keep Moving Forward

It’s the last day of May, and May is Prader-Willi Syndrome awareness month.  I would like to share our story about this syndrome, and kick off my talking about our journey. Last August, our daughter Brooke was born.  She is our third child, and while having a baby is never routine, we thought we at […]

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